tag:blogger.com,1999:blog-1663754142032806426.post4620386003004307889..comments2023-05-24T06:29:10.422-07:00Comments on Team Magnus: Surgical ConsultAnonymoushttp://www.blogger.com/profile/15231556115820666963noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1663754142032806426.post-75981712211261097772010-07-16T07:22:09.038-07:002010-07-16T07:22:09.038-07:00Thanks, Ashley, you're right, I should follow ...Thanks, Ashley, you're right, I <i>should</i> follow up with the GI docs about why they decided Magnus is not a good candidate for endoscopy. I got the sense that maybe they're just being cautious.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1663754142032806426.post-75847113509430745032010-07-16T07:02:59.832-07:002010-07-16T07:02:59.832-07:00Hey Jen. Just to throw out 2 things from my exper...Hey Jen. Just to throw out 2 things from my experience with C getting her G tube. The first is, I would ask the GI doc who did the scan to explain to you in more detail why M cannot have the tube placed with endsocopy. The GI told us as well that C may have to have hers surgically placed but she has other issues. She has heterotaxy (nothing on her inside is where it should be) and she had her LADD procedure to correct malrotation (causing scar tissue around the stomach area). Yet, the GI doc was not only able to place her tube with endoscopy but he did it in literally 5 mins. It took her longer to be sedated and wake up from the sedation then to place the tube itself. My opinion, I would push for a better answer on why surgery versus endoscopy. All the GI doc needs is a good spot on the tummy that is not being obstructed by scar tissue or intestine. Second, C has horrible reflux with copious amounts of vomiting. We actually thought she turned the corner last month but the vomiting is back. However, even with the G tube (and being told the tube can make refulx worse...opperative word being CAN) her vomiting and reflux is no worse than it was 3/4 months ago, long before the tube placed. I know you have a very hard decision ahead of you. I hope you are able to get the answers you need soon. Wish I could offer more help.Ashleyhttps://www.blogger.com/profile/12161424147949778910noreply@blogger.comtag:blogger.com,1999:blog-1663754142032806426.post-73657757518460832992010-07-15T18:44:47.715-07:002010-07-15T18:44:47.715-07:00Jen, it never ceases to amaze the spectrum of opin...Jen, it never ceases to amaze the spectrum of opinions that these doctors have regarding the correct course of treatment when it comes to caring for these children. It all comes down to what the protocol is for that institution and his/her experience. Our daughter's reflux is pretty severe and I am hoping against hope that it will improve with time. The last thing we want is to have her undergo yet another surgical procedure especially one as nasty as the fundoplication seems to be.Sabrina Sullivanhttp://www.facebook.com/sabsullynoreply@blogger.comtag:blogger.com,1999:blog-1663754142032806426.post-29707852670456636982010-07-15T16:47:29.308-07:002010-07-15T16:47:29.308-07:00Ugh...sorry things aren't more black & whi...Ugh...sorry things aren't more black & white. Sounds like a difficult decision. But like you pointed out, it took quite a while to get surgery schd. so may be it isn't as urgent as the dr. implied. Maybe a couple more weeks is ok, especially if his eating is improving. Good luck...we're thinking about you guys!allisonhttps://www.blogger.com/profile/01838486184806527822noreply@blogger.comtag:blogger.com,1999:blog-1663754142032806426.post-47158823101238745102010-07-15T16:43:11.514-07:002010-07-15T16:43:11.514-07:00Sabrina, thanks for your comment. Isn't it am...Sabrina, thanks for your comment. Isn't it amazing how two different doctors will tell you completely opposite things without indication that anyone could possibly think anything different? The surgeon told us that G tube placement would "definitely" make reflux worse, but Iggy and I agree that a fundo should be a last resort.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1663754142032806426.post-53442709600475103552010-07-15T16:13:56.628-07:002010-07-15T16:13:56.628-07:00I met with our daughter's GI doctor today and ...I met with our daughter's GI doctor today and I asked her about the g-tube exacerbating acid reflux and she said that it does not cause the reflux to get worse. I also asked her if the reflux would get better with time as it does with most babies as their GI systems mature. She told me that with most cardiac babies reflux is an issue and that the majority of them outgrow it by the time they are about 1 years old. I asked her about the fundoplication as this too is a concern of mine and she said that it might be necessary but it would be something that they would evaluate much later down the road. <br /><br />Don't let them sell you a load of goods because that is what the protocol is. Each child is unique and while protocol is great as a guideline it should not be the rule. Treating our kids is not like baking a cake. You can't follow the recipe every time and be guaranteed a cake will be the result. Get the g-tube but forgo the fundoplication until a later time if that proves to be necessary. <br /><br />Good luck on the placement and the decision making.Sabrina Sullivanhttp://www.facebook.com/sabsullynoreply@blogger.com