Wednesday, September 15, 2010

Normal life

What do you know, we've gone almost 2 weeks without any sort of medical appointment! (The last thing we had was his head ultrasound, which will have been 2 weeks ago as of tomorrow, and his next appointment is with his GI docs next Friday). Although his head size, among other things, is still a nagging worry in the back of our minds, life has been pretty normal.

Magnus has continued to make steady progress with his weight gain, and along with that has also been making progress with his gross motor skills. He's still extremely delayed for his age in that department, but interestingly seems to be progressing in a weight-appropriate, rather than age-appropriate, manner. By that I mean that now, at almost 10 months, he weighs about 14.5 pounds, which is the 50th percentile for weight for a 4 month old, and he is doing things like starting to be able to sit on his own for 10-20 seconds and to bear all his weight on his legs. These are the types of gross motor skills that typically develop around 4-6 months. So we're hopeful that as he continues to catch up weight-wise, he'll also catch up in his gross motor skills.

In a related development, Magnus has finally started receiving early intervention services. For the past two Fridays, an early interventionist has been coming to our house, but we're actually going to start seeing a different early interventionist this week who has a bit more expertise with delays related to health problems. Apparently, the early interventionist he saw before was assigned to us before the agency providing services had gotten his paperwork, so the early interventionist showed up at our door not knowing anything about him, despite the fact that we went through all that testing! Anyway, I could write a lengthy screed complaining about all the bureaucratic ridiculousness of getting him early intervention services, but I fear it would be very uninteresting so I'll just say that I'm glad he is finally getting services.

Meanwhile, Magnus continues to be his usual charming self. He's very into toys that make noise these days, which means that he loves rattles and his toy xylophone. He also loves to grab people's faces; last night he stuck his finger up my nostril and scratched me so hard that I got a nosebleed! Time to trim his nails again, I guess.

4 comments:

  1. Glad that things are moving along. I love the two latest videos of Magnus with the rattle and watching himself laugh. It's so much fun to see the videos, especially since we don't see him on a regular basis. Thanks for keeping all of Magnus's fans updated!

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  2. I am so very glad to hear Magnus is doing so well and that you getting into a more normal life. I found from my experience with C that she did the same thing...as her weight stablized and increased so did her gross motor skills. I observed the same as you, her improvment ran along weight increase not age increase. C is now 13 months old and is sitting by herself, able to get to sitting and crawling position by herself, is crawling all over the place and is pulling to standing. I think once she passes the 20 pound mark (putting her the approx size of a one year old) she will begin to stand on her own and take some steps holidng on. I have a good feeling that Magnus will start really catching up fast now :)

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  3. Sounds good! We feel that early intervention was great; this summer we were having visits as much as five times a week for a stretch, and Cora did great. It is also a nice break for you and for Magnus to gain confidence with other friends/care givers. I hope it goes well! Cora just got back from the cardiologist today, and she is finally 15 pounds.... I don't think I've ever worked so hard for anything as for those 9 pounds (er, 8 pounds 13.5 ounces...)! Good luck.

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  4. Yay for good news all around [post & comments]!!
    The videos where he's watching himself and laughing and the WTH look on his face when his piggy starts making noise are too funny! I miss the Ernie laugh, though.

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