Tonight we actually got a sleep room inside the ICU (that means a bed with a sheet on it, but no pillow. Apparently pillows are impossible to come by in this hospital) so I went there to take a "nap" and ended up sleeping for about 6 hours. When I came back to Magnus's room, he was unhappy and pretty disoriented (actually he'd been disoriented for most of today; earlier he had started crying and pointing at a bunch of toys, saying "I want that chocolate milk!") The fellow who's in charge of him did not have very encouraging things to say about his collapsed lung. They are being aggressive with the respiratory therapy, but it seems that there hasn't been much change. They're talking about maybe having to sedate and re-intubate him. I'm not crazy about the idea of a step backwards like that, but it might be more comfortable for him to just be sedated since right now he is so unhappy. He is mostly dozing, but wakes up every 10 or 15 minutes demanding water or ice, which he can't have. But at least no major surprises tonight.
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7 years ago
Thanks for the updates, Jen. We continue to hope and pray. Courage to both of you and recovery to Magnus.
ReplyDeleteJen, why no water? I would think it would help him to move stuff out. I know it's a hospital but perhaps they'd be open to thyme and sage. Check with a local naturopath, I'm sure they'd be wiling to advise. Thyme and sage are both expectorants. Best if used as a tea but the aromas might do something as well. They used to hang thyme at the head of hospital beds for lung health. Just a thought. I hope he has a more comfortable day and all steps are in the direction of strength and healing. I hope you and Iggy are doing well. Love you all so very much!
ReplyDeleteOh Jen, I'm so sorry Magnus is having such a bumpy recovery. Please let us know if you want us to come out there to give you some relief. Sending lots of hugs and love.
DeleteArlo, Jerome, and I are rooting for you guys. So sorry Magnus is having such a rough recovery. Wishing for a smoother day with forward steps. Arlo has been thinking happy thoughts for Magnus and wants to get ice cream with him when he leaves the hospital, but he wasn't sure of Magnus' favorite flavor. He is also working on a magic wand for Magnus. Sending lots of love and super power!
ReplyDeleteMagnus can't have water because he's wearing a CPAP mask that is pushing air into his lungs at high force. If he were to eat or drink anything, it would be aspirated into his lungs, and that is the last thing we need right now. Oh, and Kate, Magnus's favorite flavor of ice cream is chocolate, although truth be told, he's not too picky!
ReplyDeleteSorry it's so rough! Keep us updated when you can! I'm also a bit curious about why they're thinking of intubating him rather than placing a chest tube if the collapsed lung isn't responding (or does he already have one)? I'm always amazed by what young bodies can bounce back from -- hope it happens quickly for Magnus!!
ReplyDeleteDr. R., good idea! Stay tuned for my next update!
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