Our son Magnus was born November 19, 2009 with a serious congenital heart defect, HLHS. I set up this blog to keep our family and friends updated on his condition, and to connect with other families dealing with HLHS.
The cath lab just called with an update. Apparently everything looks good and he doesn't have any collaterals they need to coil, so no nasty surprises there. The nurse I spoke to didn't say anything about his pressures or Fontan eligibility. But they're just going to open up the stent he has in his pulmonary artery, and then they'll be done.
Dropoff in the cath lab went pretty well. They actually used oral versed and then IV meds rather than gas to sedate him. People often report that their kids get "goofy" with the versed, but with Magnus's normal goofy baseline, he didn't really seem any different! He just started talking more and more slowly and then went to sleep.
Iggy and I had a nice lunch/dinner. Now we're in the UCSF library waiting for the call to go back and pick Magnus up.
Magnus got his IV, and as usual, he barely flinched. The child life specialist seemed skeptical when we told her that Magnus is usually very stoic for IV placements and blood draws and that he never cries, but both she and the IV nurse were pleasantly surprised. He's been busy playing with hospital toys and watching Spongebob on the iPad...so much so that he hasn't even asked us for anything to eat or drink. And now that he has his IV, they're giving him some fluids and glucose, so hopefully that should keep him relatively comfortable. So far everything has been as easy as we could have possibly hoped, with the exception of having no idea when he'll go back for the cath.