Our son Magnus was born November 19, 2009 with a serious congenital heart defect, HLHS. I set up this blog to keep our family and friends updated on his condition, and to connect with other families dealing with HLHS.
Magnus had his follow-up cardiology appointment today. Everything looked good and we were given the go-ahead to take him off the oxygen! I cannot even begin to tell you how excited we are about this development! Of course, at some point he might have to go back on it, but for now we're free! No more noisy concentrator 24 hours a day! No more having to fight with Apria to order supplies! No more being on a 7 foot tether when we're out and about and having to lug around an awkward backpack! No more having to stick his cannula back in his nose every 10 minutes after he pulls it out! And we can travel!