Monday, October 4, 2010

One more time

Magnus had a cardiology appointment this morning. Unfortunately, his head has continued to grow a bit, plus his oxygen saturations were on the low side, in the low eighties instead of the high to mid-eighties. The upshot is that this means a trip to the cath lab and another brief hospital stay sometime in the next month or so.

I suppose this is not good news, but it's not the end of the world, either. The thinking is that both his increased head pressure and low sats are probably due to either collateral veins or a narrowing of something in his circulation, both of which can be pretty easily fixed with a cath. If it's not either of those things, then they can at least do some poking around and measure his pressures. There is a possibility that they wouldn't find anything from the cath, in which case we just wouldn't do anything.

We're not exactly thrilled that he has to go back to the hospital, but the head size thing has been hanging over us for a while, plus I have noticed that he's seemed a bit bluer lately, so it would be really nice if the cath could fix these problems and we didn't have to worry about them anymore.

He also had an echo at his cardiology appointment today, and that looked good, so everything else seems to be OK. He did have a cold last week (the second one he's had in his life), but has otherwise been doing well. He's getting better at sitting up on his own, and even got his first tooth last week, on the same day as our 2nd wedding anniversary!

Last week, Magnus also saw a feeding therapist, which was really helpful for us. We've been trying to get him interested in solid foods for 6 months now, with no real success, and were feeling pretty discouraged about the whole thing. The feeding therapist said that he was somewhat "orally defensive," (though it seems to me that it is rational to be "defensive" about strangers putting things in your mouth?) and suggested that we just put him in his high chair for a short time each day and let him play with a few kinds of food. So far, this mostly just means that he ends up with pureed squash in his ears and hair, but occasionally he will lick food off a spoon. She also suggested that we buy some tools to stimulate the area around his mouth and to help him practice chewing, so those are on order.

To finish up, here's a cute video from this weekend. Arlo's mom and I have known each other since we were 5 years old, and now we live a few miles from one another and have sons who are 2 months apart in age. And yet we have been really awful about taking the time to get together. I think that's going to change, though, especially seeing how much fun those two have together!


  1. Jen, you mentioned in a previous post that Magnus' development seemed to be more in line with his weight than his age. Could something similar be going on with his eating? Maybe he's just not ready yet? Just a thought.
    I hope that the cath gives you the answers you seek. He's getting cuter by the day!

  2. Hang in there - I hope they can fix the issues he's having and better days will be ahead for him. He's such a trouper and keeps smiling through everything. Love the latest video!

  3. OMG love the video, what a handsome, smiley guy! his buddy is a cutie too!

    I'm interested to see why they learn from his upcoming cath. hopefully there's nothing going on and he just grows the way he grows, but if he does have collaterals I spose it would be better to find them and coil them sooner than later?

    good luck! You know I'll be thinking of you guys!