Good news: we are FINALLY home (though it took all day, and Iggy has to go back to the pharmacy tonight to pick up his meds because they weren't ready).
Bad news: Magnus has to be on oxygen all the time, for the foreseeable future.
We are pretty devastated. We have to give up our nanny share with the nanny we love, who HE loves, and who loves him. And now we have to scramble to find someone who can take care of a baby who is attached to an oxygen tank. The longest he's allowed to be off the oxygen is for 2 hours.
I was trying to cheer us up, and said to Iggy "hey, remember when we thought getting a G tube was the end of the world? And now it just seems normal." And then Iggy pointed out "it's not just the oxygen, it's what the oxygen represents." Yeah. The fact is, Magnus is not doing well, and now all you have to do is look at the cannula on his face to see it. But between the oxygen and the meds, it's still possible things could turn around for him. Through all of this, I keep remembering the neonatologist who told us when I was 26 weeks pregnant that we should just induce labor and let nature take its course because there was no way I would carry him to term. She was wrong. And this time, his doctors aren't giving up on him, but they are definitely worried. As are we.
5 months ago