Tuesday, December 21, 2010

"Not bad news"

We're back up on the ward. Magnus woke up about half an hour after they turned off his propofol IV, and gulped down some sugar water. We had to do a few things to get him adjusted, but now he's back asleep again, and I'm really hoping for a peaceful night! We have one of our favorite nurses tonight, so that's a big plus.

When we got back up to the ward, Magnus's regular cardiologist was here. She had only spoken briefly with the cath team, but she said that she wasn't too disappointed by today's cath. "It's not bad news," she said. "He could have gotten worse." She said that she was hoping to get us off the oxygen, but obviously that's not going to happen until his pressures start to improve. She also said that she was heartened by the fact that they were able to do what they set out to do today in the cath lab. She also laid out a bit of a longer time frame for his next cath, something like 3-5 months from now.

So, yeah, I guess that's pretty much how we're feeling. We didn't get great news, but we're relieved that we didn't get really bad news, either.


  1. We're glad that he got through the procedure okay and that he went to sleep. We hope you guys got some sleep, too. Any chance his pressures will improve spontaneously? Thinking of all of you. Love, Mom and Dad

  2. I'm glad to hear that all is well.

    I know it is way early, but has the 3rd surgery [fontan] been mentioned as something that would help his pressures?

  3. So glad to hear the cath went smoothly. Will keep sending positive energy your way for lower pressures.

  4. Thanks for your comments and good thoughts, everyone!

    Mom, they're hoping that the oxygen and viagra will work its magic over time. Without those things, he would likely continue to get worse. And Lisa, if his pressures don't improve, he unfortunately won't be eligible to have a Fontan.