Today was another good day. Magnus seems to have conquered his fast breathing issues, and now he just has to master the art of eating. He did OK with the 3 bottles he drank today, but still has to work on building up his stamina a bit.
It looks like now the plan is for us to go home sometime early next week. They think that the reason why he had some problems last week was because they pushed the feeding too hard, so we're going a bit more slowly this time. Tomorrow they're going to transition him back onto the oral diuretic (as opposed to the IV one) and then on Friday he goes back on all bolus feeds (as opposed to the continuous feeds he gets at night now). If he does OK with that for a few days, we can go home! We were a little disappointed to hear that they're not planning to send him home until next week, but the upside of that is that I think there's a decent chance he'll be able to take in all his food by mouth by then and we won't need to go home with an NG tube.
Magnus also got all his stitches out today and the pacer wires that were in his chest. He did not enjoy that very much, but he looks great and his scar is surprisingly minimal. Of course, he still has at least two more chest surgeries in his future, but scar #1 doesn't look too bad.
6 months ago