Magnus continues to make progress, but today was kind of a rough day for us. Maybe it's just that now he's getting food, he has the energy to be fussy, but he was super unhappy all morning, and was even fussing in his sleep! On top of being fussy to start with, he also had to have his IV line replaced this morning because he wiggled so much he ruined his old one. Unfortunately, that took a lot of poking and prodding followed by 2 tries with the needle (the first time they got it in, they realized it was in an artery and not a vein). Then we had to move rooms because someone else needed the one we were in.
Like I said, though, he is making progress, and he got his chest drainage tubes out this afternoon! He seemed to settle down a little after that, and I'm hopeful this will make for a happier Magnus in general, because all the nurses were saying that chest tubes are really uncomfortable to have in. They certainly don't look pleasant.
They also doubled his feeding rate this morning. He's still only at 4 cc's per hour, which is not much, but they're hoping to ramp him up to 18 cc's/hr by tomorrow. There's also been some talk about weaning him off his high-flow nasal cannula.
So, little by little, he's getting unplugged! I just hope he gets to enjoy it a little more now.
11 months ago