Today was a pretty ordinary day for Magnus, but a big step for us: we put in Magnus's new NG tube all by ourselves. It was actually a lot easier than I thought it would be, and I think the part the little guy actually hated the most was having us stick all that tape on his face to hold it in place!
So this pretty much means that all our parent education is done. We know how to insert the tube. We know how to give his medications and food and to check placement of the tube, and to flush it after we put anything in. All we need now is for the little guy to get clearance to go home! They're putting him back on bolus feeds tonight, and assuming that he tolerates that OK, we're hoping to get the all-clear to go home on Tuesday. Conveniently, my parents are coming to town on Monday, so it'll be nice to have those extra hands around for our first days at home!
11 months ago