Sunday, March 21, 2010

Life at home

This week has really flown by since we got out of the hospital. We went home early on Saturday, and Magnus continued to be pretty fussy for his first few days at home, which made life kind of difficult because we had to go back to our regular work routines. We had a few really bad nights where he would wake up every hour or so. But I would say that as of around Thursday, Magnus was pretty much back to his old self. We posted a couple new videos showing that our happy guy is back.

On Monday, Magnus had his 4-month pediatrician's appointment. We see two pediatricians: a pediatrics resident and the doctor who supervises her. I like this arrangement because it's kind of nice to have two different perspectives on what's going on, and I like both of our doctors individually. Anyway, I think their expectations for Magnus were fairly low given what he's gone through, but we spent much of the appointment assessing his achievement of various developmental milestones, and impressively, he's more or less on track when it comes to most things. The one thing he's definitely lagging on is doing a push-up (but we're not even letting him try to do one right now because he's not supposed to strain his chest muscles until his incision is fully healed). Unsurprisingly, he also hasn't rolled over yet, but again, we don't want him to right now anyway.

So, things are pretty much back to normal around here. In a way, it's hard to believe that Magnus had open heart surgery less than 3 weeks ago.

And then tomorrow, it's our good friend Julianne's turn. Julianne has a different heart defect from Magnus, Ebstein's Anomaly, but her doctors are treating it with the same 3-stage surgical sequence. Julianne's a tough girl, and I feel confident that she'll do great tomorrow, but I'm sure her mom Clare and the rest of her family would appreciate if you stopped by her blog to offer your support, as well as sending your prayers, positive thoughts, good vibrations or whatever ethereal support you have to offer their way!


  1. Your post is reassuring and full of good news. I've been anxiously waiting to hear how Magnus is doing now that you're home. Thank you for the comments on Julianne. Yup, good vibrations are being directed both your way and towards Julianne in Maine. It's tough not being there with her this time. Today's going to be a l-o-n-g day. I'm so glad you and Clare found each other and can share your personal experiences, stories, cares and concerns. Sending hugs for Magnus and continued positive thoughts for his full recovery.

  2. I am very happy to hear that everything just keeps getting better for Magnus and all of you. From the looks of some of your pictures and videos, Magnus isn't far from rolling over. Before you know it, he'll be up and running! Take care!

  3. DID you know: In an interview with Larry King about his gold medal victory with the Double McTwist 1260 in the Winter Olympics, Shaun White admitted that he was born with a congenital heart defect called Tetralogy of Fallot.

    Before Shaun was one, he had two open heart surgeries to amend the four anomalies. The operations left White with a fully functional heart, allowing him to begin his career in snowboarding at age six.
    Go Magnus Go!!