Sunday, November 29, 2009

Still doing well off vent

Just a quick note to say that Magnus seems to be doing really well off the vent so far. They have a nasal cannula on him to deliver oxygen if he needs it, but he's spending most of the time with that set to the same oxygen percentage as room air. We might get to hold him later today, but right now they're still trying to make sure he's doing OK without messing around with him too much. He did have some funky tests this morning that generated some talk about putting him back on the vent, but later test results were OK, so we're hoping he stays off the vent.

One of the things that can happen to babies who have this surgery is temporary vocal chord paralysis, which can interfere not just with the voice, but also with feeding. Magnus's cry is definitely muted right now, but they think it's just swelling from having the vent in, because he is able to make some noise. Hopefully by tomorrow he'll be back to his old self.

We have started taking pictures of him again, so hopefully we can get some of those up tonight or tomorrow!


  1. Great news!!! I hope you guys get to hold him today and that he continues to do well. He is such a little fighter!

  2. wow, full speed ahead! It's wonderful to check in and keep reading great news! So happy for you guys, can't wait to see new pictures! Are you both photographers?

    I think Julianne had some throat issues, even though no one would back me up on this, she's still struggling with feeding...hope Magnus gets the hang of it right away!


  3. Thanks for the update. We live for these, and love it when the news is good. I do hope you get to hold him, and can't wait to see the new pictures. I'm also hoping for some more videos in the near future - makes us feel more like we're there. Fight on, little Magnus!

  4. Go Magnus, go! So glad to read these updates. I hope you get to hold him very soon!

    Rachel B

  5. Hi there,

    I found you guys though the Edmund's blog (I know Hope's family too). Our daughter will turn 1 year old on December 12. She was born with several heart issues, and had her OHS in April 2009...we are so grateful she is doing so well. If you haven't found it yet, there is a WONDERFUL community of heart families on BabyCenter. Here's the link:

    They have been like family for us. Congratulations on your little. I LOVE the name Magnus!! Annamarie
    1in100. Know more. Do more.

  6. Go, Magnus, go! Glad to hear he's still recovering well, and here's to lots of baby snuggling in the near future.

  7. So glad to hear things are going forward ! Enjoy that little guy ! He seems like a fighter already !

  8. Way to go Magnus! He is doing so great. Hope's vocal chords were slightly paralyzed, but her voice is definitely back to normal now that she is home. I think she was waiting to come home to let her real voice be heard!