Today was a great day! Magnus was awake all day and tolerated his oxygen settings being turned down. The physical therapy team managed to get him out of bed and sitting in a chair on his own for a while (this took a team of 3 people just because of all of his lines and tubes and stuff). Right now, the thing that's keeping him really tethered to the bed is that he's got nitric oxide gas mixed with his oxygen, and the nitric oxide isn't portable. However, they're in the process of weaning him off that and onto an oral medication that does the same thing...as soon as that is complete, he'll be able to go for a ride in a wheelchair or wagon and maybe even start trying to walk. His nurse today also commented that his chest tubes aren't draining very much any more...hopefully that means we can take them out pretty soon, too, which will be a huge step.
I think the only negative thing that
happened today was that now Magnus doesn't have to expend all his
energy on just breathing and it has given him the opportunity to reflect
on his situation. Today he looked around and asked me "how are we going
to fit this in the car?" "You mean your toys? They'll fit in the car
no problem." "No, how are we going to fit this hospital bed in the car?"
I guess he thought that he was going to be in the hospital bed forever.
Then later, when Iggy and I were leaving the room so the nurses could
do their shift change, he got upset because he thought we were going
home and leaving him at the hospital. I think he got confused because
his day nurse had mentioned that she was going home.
Anyway, those incidents aside, it was a great day and Magnus was pretty much his usual self!
6 months ago